Spirit of Giving


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Help IWK children live happily ever after.

Stephanie Reid is the Program Lead, Marketing Strategy at the IWK Foundation and a member of the runDisney community.

Children's Miracle Network BalloonHave you ever considered running a race but never had the right motivation? Are you an avid runner looking for a new challenge? Have you been looking for an exciting and unique way to support the IWK Foundation? If you answered yes to any of these questions then this is the blog post for you.

Children’s Miracle Network Hospitals® is the presenting sponsor and celebratory charity of the Disney Princess Half Marathon Weekend at Walt Disney World Resort in Orlando, Florida. Funds raised for Children’s Miracle Network Hospitals in conjunction with this magical event will help kids grow up happily ever after. Children’s Miracle Network Hospitals raises funds and awareness for 170 children’s hospitals in the U.S. and Canada, including the IWK Health Centre located right here in Halifax, Nova Scotia.

Pirates of the Caribbean on the race route of Disney's Princess Half Marathon 2014.

Pirates of the Caribbean on the race route of Disney’s Princess Half Marathon 2014.

It’s rare when two of your passions collide so perfectly. I’ve been participating in runDisney races since 2010 when I completed my first marathon during the Walt Disney World Marathon Weekend. And I have to say, it wasn’t hard to get hooked as there is nothing quite like running a runDisney race. The costumes, entertainment and the overall experience of running through Disney theme parks and resort areas make runDisney races a bucket list item for any aspiring or seasoned runner.

So naturally, when I learned I could participate in a runDisney race in support the IWK I came running (pun intended). Children’s Miracle Network participants can support their local children’s hospitals by signing up for the Princess Half Marathon or the Glass Slipper Challenge (a 19.3 mile adventure over 2 days). Glass Slipper challenge participants will run the Disney Princess Enchanted 10K on Saturday, followed by the Disney Princess Half Marathon on Sunday. Currently all races are sold out to the public but you can still participate by signing-up through Children’s Miracle Network Hospitals® or another participating charity or travel provider.

So are you in? Here’s the run-down (again, pun intended – I just can’t help myself!):

  • Sign-up for either the Princess Half Marathon or the Glass Slipper Challenge at princesshalfmarathon.childrensmiraclenetworkhospitals.org
  • Fundraise the required minimum amount for your race to support children and families at the IWK Health Centre
  • Make your family’s travel arrangements
  • Pack your bags for the happiest place on earth
  • Just keep running…

The upcoming Glass Slipper Challenge will mark my 5th and 6th runDisney races, and they certainly won’t be my last. But for right now, my focus is on fundraising and supporting this wonderful cause that is very important to me. As an extra incentive to my supporters, if I reach my minimum fundraising goal by August 18, 2014 I have promised to come to work dressed up like Mickey Mouse and stay in character for an entire business day. That’s right, I will do absolutely anything for this cause and the children and families at the IWK Health Centre.

Have a magical race and thank you for your support!


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10 reasons we love our donors

Happy Valentine’s Day! Donors are an essential part of making the IWK the centre of excellence that it is today. We are so thankful for their love and generosity! This Valentine’s Day, our staff members at the IWK Foundation wanted to let our supporters know exactly why we love them. 

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10 reasons why we love our donors.

1 - I love the passion so many of our donors have for the IWK. They are fiercely dedicated to the cause and they understand the direct impact their giving has on patients and staff.  It’s a beautiful thing! ~ Carla Adams, Principal Communications Strategist

2 - Our donors provide more than money – they give passion, energy, and expertise! ~ Molly Cotter, Director of Finances and Donor Services

3 - They  not only give, they can go above and beyond, volunteering their time and efforts beyond the financial. They’re so happy to give to total strangers! It really is inspiring. ~ Christie Moore, Major Gifts Officer

4 - I love our donors because they help the staff at the IWK make miracles happen! - Lynda Moffatt,  Development Officer – Cape Breton and Eastern Nova Scotia 

5 - I am very grateful and love our many donor’s who, because they care, are quietly having an impact on the quality of health care we have come to expect from the IWK; they help to ensure that this level of excellence can continue well into the future. Their continued support is both humbling and vital. ~ Mary Theresa Ross, Manger of Planned Giving 

6 - They inspire me to be more giving.  ~ Trena Crewe, Director of Donor Relations

7 - I love our donors because they give children hope. ~ David Huett, Donor Service Specialist

8 - I love our donors because they care about the IWK as much as we do. Their donations are special and come from the heart. We both share the same the goal, to make the IWK the place possible for Maritime children, women and their families. ~ Andrew Paris, Administrative Assistant/Receptionist 

9 - I love our donors for their spirit of generosity and support for Maritime families.  ~ Natalie Foster, Database & Donor Services Administrator

10 - I love our donors because beyond the financial support they provide, they provide the most important gift of all:  hope. ~ Geoffrey Milder, Development Officer, Mainland NS & Children’s Miracle Network Program Director


From the bottom of our hearts, thank you to every one of our supporters. You are part of everything we do. 

Make a gift to the IWK Foundation.


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Making a change in the world

Shanyn, Maddy, Jessica, and Luna

Shanyn, Maddy, Jessica, and Luna

At the beginning of the school year we got our class outline. On it, our expectations and our teacher’s goal for this semester was for us to do something to change something in the world, whether it was big or small.  A couple of us got together and figured out a great cause we wanted to help.  I loved the idea of the IWK, it was so important in our community and they saved two of our group member’s lives.  Neither of us would have been here if it weren’t for their help!  We had a goal of $500 to raise for them.  We wanted to make sure that the IWK would always be there to help children like us.  In our school, in the community of Liverpool, on October 24th, we had a bake sale. Altogether we raised $125 for that day and scheduled a bottle drive for the 2nd and 3rd of November.  In the freezing cold we managed to raise $380 which was just enough to reach our goal.  We were so glad to be able to give them $505 towards the kids that needed our help.  We drove into the IWK one day and did the cheque presentation.  The girl that assisted us from the start was very helpful, and I am glad that we chose this charity.

We had a great journey with the IWK and loved every step of the way.

Shanyn, Maddy, Jessica, and Luna


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Introducing Kendra and Kinsey!

Hi, I’m Kendra!  Hi, I’m Kinsey!

We’re really excited to be the IWK Superstar Club ambassadors.  We’ve spent a lot of time at the IWK.

Kendra and Kinsey Fader

Kendra and Kinsey Fader

We were born three months early and couldn’t even breathe on our own.  Our mom told us about how the NICU (Neonatal Intensive Care Unit) doctors and nurses at the IWK worked hard, for almost five months, to get us healthy enough to go home.  After that, we still had lots of doctor’s appointments, lots of surgeries and lots of hospital stays.  Kendra even had to be tube fed 18 hours every day, by a feeding pump she wore in a lady bug backpack, until she was almost four years old!

Today, we’re five years old – almost six!  We just started Grade 1.  We still have lots of regular doctor’s appointments at the IWK, but that’s ok, we don’t mind going there.  We have so many friends there.  Everybody is so nice and they are always happy to see us and tell us how much we’re growing.

Since the IWK has done so much for us and other kids, we like to help them out.  We have been happy to share our story, do our own fundraising, make paintings for donors and even give our own thank you speech to some people that donated money.

By being ongoing monthly donors, our family is also a proud part of the IWK Superstar Club too.  Our mom and dad have told us that by donating money every month and sharing our story, we are helping babies, kids and families who are at the IWK now, get better faster.  The money we give every month helps the hospital buy newer equipment, like ventilators and feeding pumps that are better than the ones we had.  This is our way of helping to make the IWK even better for kids and families in the future.

Will you help us help the IWK by joining the Superstar Club?  We promise you won’t regret it!

Love,
Kendra and Kinsey

Learn more about the IWK Foundation.


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Made-to-Order Independence

This article was written by Debra Wells-Hopey for the Spring/Summer issue of Izaak Magazine – an in-depth, behind the scenes, all-access publication highlighting the incredible, everyday happenings at the IWK Health Centre.

11-year-old Taya and occupational therapist Julia Gates

11-year-old Taya and occupational therapist Julia Gates

How a customized wheelchair program provides quality of life for hundreds of kids.

Taya is spirited, bright and patient as she describes the way she gets around in the world.

“When I move my head left, I turn left,” she says enthusiastically, even though she must have explained this to people many times over. “When I move my head right, I go right. And when I move my head back, I go straight forward.”

At 11 years-old, Taya has Cerebral Palsy and is a long time visitor to IWK Specialty Seating, a service within the IWK’s Rehabilitation Service. The service offers assessment and provision of customized seating and positioning equipment, including seating inserts, wheelchairs, special-needs strollers, bath seats, car seats and toileting aids.

Julia Gates, Occupational Therapist in Specialty Seating, and Nancy Cashen, Operations Manager for Rehabilitation Services, have known Taya since she was three years old. “This program is designed to assist children who can’t walk on their own, most often due to Spina Bifida, Muscular Dystrophy or Cerebral Palsy,” explained Gates. “Children are referred to the program as early as 14 months and stay with us until they are ready to transition to adult health care.”

Gates explained that although children this young are able to still use a stroller, it means they are dependent on others to get around — at an age when they want to start exploring the world on their own.

“Independence is an essential part in a child’s growth and development,” added Cashen.

Specialty Seating at the IWK consists of Cashen and Gates, as well as a Specialty Seating Technician, David Beattie, and a Funding Coordinator. Together, along with the family, this team determines what kind of wheelchair would be best for the child.

“We take many factors into account,” says Gates. “For instance, a level of hand mobility is essential for maneuvering a manual wheelchair, but not necessary for a power wheelchair.”

The amount of seating support required is a complex assessment that is completed by the occupational therapist and takes into account the disease prognosis, planned orthopaedic surgeries, maintenance of skin integrity, comfort, functional abilities and wheelchair skills. All children are different, and the amount of support required could be viewed as mild, moderate, or complex. Generally, seating for a mild support is not custom made, and may be arranged through a local wheelchair supplier in the community. The seating for children who require moderate or complex support is custom made by the Specialty Seating Service at the IWK.

There is a workshop onsite at the IWK where Beattie employs his expertise. For specialized seating, an impression is made on a mould that resembles a large bean bag. This shape can then be transferred to a 3D digital model on the computer. These images are sent via email to the United States where the only machine of its kind in North America manufactures the seat. It is then shipped to the IWK for fitting.

As for Beattie, he has been with the hospital since 1989. He was familiar with an Occupational Therapist who suggested he may enjoy the work. Considering Beattie has remained in the program for more than 24 years, it certainly is a great fit.

“This is the perfect job as far as I’m concerned,” says Beattie. “I get to work with my hands and help people simultaneously. The work is challenging and rewarding.”

Beattie’s workshop looks much like any other, yet very unlike anything you expect to see in a hospital. There are various materials stored: pieces of repurposed wheelchairs, three industrial-sized sewing machines, neoprene for upholstering, two band saws, a table saw and a wealth of tools.

“When we first see someone we measure them for a seat using a fitting frame. From these measurements I construct a seat out of foam and plywood and I upholster it. I also adjust and repair wheelchairs as needed. I’d say one of my favourite parts of my job is going on the mobile clinics. Several times a year we go to Cape Breton and the Annapolis Valley. At times we go to schools here in HRM, or even homes.”

Gates explained that the first order of business when a child needs a wheelchair or seating device is to meet with the family and get to know their needs.

“This initial meeting is so important,” says Gates. “It’s when we first get to meet the child; establishing their needs, administering a postural assessment, taking measurements, then making recommendations.”

“Recently we had a child who needed a new power wheelchair. We had two styles and tried them both in the home to see which operated better in that specific environment. It needs to work in the child’s daily life.”

Having the right wheelchair and seating can make all the difference in the world when it comes to quality of life — kids need to participate with classmates, explore their environment and have a sense of independence.

“When a child receives their first wheelchair it is often a period of growth for both the parents and the child,” says Gates.

Taya’s mother Christine knows all about it. She has been taking Taya to Specialty Seating and working with the team for eight years. Taya was only three when she received her first wheelchair and met the group at Specialty Seating. She was outgrowing a stroller at this point, not only in a physical way but also as a growing child her needs were changing — she had a desire to be independent, to be able to explore the world on her own.

“Although she was small enough to still use the stroller, it no longer seemed to be the appropriate choice,”explained her mom. “The chair was so much better for her

Izaak#Provincial#05-02-2013#A01posture, and allowed her to be eye level with her peers. Her diaphragm was also better supported which made her breathing and therefore her speaking so much better.”

Taya was born with cerebral palsy. She enjoys her grade five class and likes to read — especially Harry Potter books. She also swims and uses a sit ski at Wentworth ski hill.

“I have both a manual and a power chair,” explained Taya. “I use the power chair at school. Some places are easier to use a wheelchair in than others though.”

Although Taya drives herself around by using head movements, the wheelchair must be steered remotely by a device similar to a joystick when it is being loaded into the family van. Apparently, according to a laughing Taya, dad is an expert at it, while mom, who is quick to agree, isn’t as deft.

Taya was eight when she got her first power chair. She started at six years old “training” with a joy stick, but it was a lot of work and a head array began to make more sense. The family visits Specialty Seating about once a year.

“To a certain extent, the chairs grow with her. Especially the manual chair, which she will have for about eight years,” explains Christine. “The power chair needs changes or replacing more frequently.”

As for cost, the family is fortunate that both Christine and her husband have good health care plans, however, they still certainly incur costs. The head array alone cost $10,000, which is as much as the chair. Then there are the costs of converting the family van with a manual ramp that has to be lifted and unfolded. A power system is even more expensive. This is the reality for families with a wheelchair. Taya gets to continue to visit the team at Specialty Seating until she is ready to transition to adult health care.

“I can’t say enough about the program and the staff,” says Christine. “When your child is first diagnosed, you’re in a daze. You don’t know where to go or what to do. They have helped us immensely, even in emergency situations.”

One such situation was during a weekend when Taya’s chair was accidentally run over, crushing one of the wheels. It meant facing a whole weekend propped up or in bed. Not a great thought for a young, energetic girl like Taya. Christine contacted Gates and Beattie who were more than willing to go into work on a Saturday to get the chair fixed. Says Taya, “Dave and Julia are extremely nice people and I would come to them all my life if I could.”

And there’s no higher praise than that.

To read the full issue of Izaak magazine visit www.iwkfoundation.org/izaak

Make a gift to the IWK Health Centre Foundation.


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These Hands.

June 1st and 2nd was one for the record books! Spirits were soaring as once again, generous Maritimers stepped up for the IWK and declared it as a special place and an absolute priority for families. Thanks to the incredible generosity of our donors, we were able to raise $5,877,139.53 during our 29th Annual IWK Telethon for Children on CTV!

To add to the merriment, on Saturday evening we debuted “These Hands” – a very special video created in collaboration with Canadian Folk/Celtic singer-songwriter, Dave Gunning.  Direced by Scott Simpson of Playmaker Films, this video showcases the incredible strength and community inside the IWK Health Centre.

We are proud to announce that “These Hands”, co-written by Gunning and George Canyon, is the East Coast Music Awards 2013 Song of the Year! The song accompanies a children’s book by the same name, which teaches us that every person has the ability to be a hero of the human kind.  A portion of the proceeds from the sale of the book supports the IWK Health Centre Foundation.

Thank you Dave Gunning for your incredible support and commitment to improving the lives of Maritime families who rely on the care of the IWK.

“I was excited to be involved with this project because of the great work that’s done by both the staff at the hospital and the Foundation,” says Gunning. “I’m very proud to have the song being used for such a great purpose.” 

Hope you enjoy the video, please feel free to share it!


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to the IWK Health Centre Foundation.


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Generosity Rocks!

Thank You Bedford Masonic Lodge 104 and the Masonic Foundation of Nova Scotia!

This past weekend was a busy one for the IWK and the IWK Foundation, but only one event brought the crowd to their (dancing) feet. The Bedford Masonic Lodge 104 held Free Bird, a rockin’ benefit concert in support of Mental Health Awareness, at the Lower Deck Bar & Grill on May 26. This event benefited several mental health organizations, including the IWK Health Centre.

The incredible generosity of the Masonic Lodge did not stop there; the Masonic Foundation of Nova Scotia recently announced they will be donating $10,000 to mental health care at the IWK! Their donation will go a very long way to changing lives through excellence in care.

Events like Free Bird not only raise much-needed funds, they also bring our community together to create an open dialogue on mental health. This is a conversation that must keep going! One of the Health Centre’s goals is to remove the stigma that exists around mental illness, and the more we all talk about it and share our experiences, the faster we will move toward positive change.

The crowd at Free Bird was treated to concerts by local bands who played everything  from rock to swing-influenced tunes. Bands included: Loose Ends, Swingology, Remedy, Memphis Nights, and The Take It Easy Band. A silent auction and 50/50 draws rounded out the event perfectly.

We are so grateful to the Bedford Masonic Lodge 104 and the Masonic Foundation of Nova Scotia for their generosity and for including us as a beneficiary of this unique event – and to the community as a whole for attending and supporting this very important cause.  Your contribution will surely change lives; together, we really can make a difference.

Swingology

Swingology had people up and dancing the night away!

Loose Ends at Free Bird

Loose Ends rocking the stage!

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